This post will have to be short. I know I haven’t blogged since February now. Our life seems to move in fast forward most days and free time to sit and write is hard to find (or when I find it I’m whipped from a day of chasing my kids around). I have a brief moment right now, so I’ll take advantage of it…
This has been a big week for me. It started with Mother’s Day on Sunday, followed by MPS Awareness Day on Tuesday, my birthday on Wednesday and tomorrow morning brings our second annual pancake breakfast fundraiser for the boys. A big week for reflection. A big week for gratitude.
Mother’s Day was a great day to remember that no matter what my circumstances, I have my boys with me right now. I don’t know what our future holds, but I have to appreciate the time I am given today. I, of all people, was chosen to mother my boys. Motherhood for me might not end up being what it is for most, but God gave me the opportunity to love, protect and care for my boys for whatever time we share here on Earth. We are blessed that the boys have a more attenuate form of their disease. That doesn’t mean it won’t do the same damage that it does to others…but it will move slower. So, I have to take advantage of the time I have TODAY.
MPS Awareness Day was a great reminder of the people God has surrounded us with and what a blessing they are. From friends changing facebook profile pictures or posting about the disease, to words of encouragement, to friends/family/school staff members wearing their Team Jarod/Team Caleb – we were overwhelmed with love and support. What a blessing you all are to us!!
And tomorrow brings the pancake breakfast. I’ll admit that functions like this are sometimes hard for me to get through. So much talking about the realities of what our lives hold right now. But again, I can’t deny the blessing that they are. So many people want to “help” or “do something” for us and what a great way to do so.
Step by step. One day at a time. That is how we approach life now. The future is a big, blank slate. I have seen where this disease will take us, but I also know that there is hope. There is research happening and a possible trial as soon as next year. Who knows how our road will look? I can’t continue to stress myself out with all of my fears of the future. I have to love my boys TODAY. I have to laugh with them TODAY. That’s all I have to handle right now. Just today.